Interdependence: The Pathway to the Inclusion of People with Intellectual Disabilities and Immigrant Disability Support Workers

Authors

  • Deanna Joyce Neri

DOI:

https://doi.org/10.18357/anthropologica6412022757

Keywords:

Friendship, inclusion, people with intellectual disabilities, immigrant, care work

Abstract

Friendship and social connections generally improve quality of
life and well-being. However, research shows that people with intellectual
disabilities face challenges forming and maintaining friendships. Disability
support workers play an indispensable yet under-recognized role in
developing friendships with people with intellectual disabilities. Because
disability support workers are disproportionately immigrant women, as they
facilitate the inclusion of their clients, they too experience social isolation.
After conducting in-depth interviews with disability support workers living
in Edmonton, Canada, for my master’s thesis project, I offer the following
observations. First, staff and clients became friends with one another in part
due to weak family ties and limited social networks. Second, relationships that
felt genuine helped staff better understand their clients and gave the staff a
deeper sense of purpose in life. Third, the context, environment, and frequency
of meetings were essential for the development of friendships. Fourth,
friendships among people both with and without disabilities were crucial for
community development. Overall, based on these interviews I suggest that
genuine friendships between people with intellectual disabilities and care
workers can help foster a sense of belonging and are integral to community-
building. My research also suggests that the meaning of friendship ought to
be expanded beyond current understandings.

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References

Adams, Rebecca, and Graham Allan, eds. 1998. Placing Friendship in Context. Cambridge: Cambridge University Press. DOI: https://doi.org/10.1017/CBO9780511520747

Aguilar, Mario. 1999. “Localized Kin and Globalized Friends: Religious Modernity and the Educated Self in East Africa.” In The Anthropology of Friendship, edited by Sandra Bell and Simon Coleman, 169–184. Oxford: Berg. DOI: https://doi.org/10.4324/9781003135821-10

Armstrong, Pat, and Hugh Armstrong. 2001. Thinking It Through: Women, Work and Caring in the New Millennium. Halifax: Maritime Centre of Excellence for Women’s Health. https://cdn.dal.ca/content/dam/dalhousie/pdf/diff/ace-women-health/Healthy%20Balance/ACEWH_hbrp_thinking_it_through_women_work_caring_new_millennium.pdf

Asselt-Goverts, A. E., Petri Embregts, and A. Hendriks. 2015. “Social Networks of People with Mild Intellectual Disabilities: Characteristics, Satisfaction, Wishes and Quality of Life.” Journal of Intellectual Disability Research 59 (5): 450–461. https://doi.org/10.1111/jir.12143. DOI: https://doi.org/10.1111/jir.12143

Barnes, Colin. 2012. “Understanding the Social Model of Disability: Past, Present and Future.” In Routledge Handbook of Disability Studies, edited by Nick Watson, Alan Roulstone and Carol Thomas, 12-29. New York: Routledge.

Berube, Michael. 2009. “Equality, Freedom, and/or Justice for All : A response to Martha Nussbaum.” Metaphilosophy 40 (3–4): 352–365. https://doi.org/10.1111/j.1467-9973.2009.01595.x. DOI: https://doi.org/10.1111/j.1467-9973.2009.01595.x

Carrier, James. 1999. “People Who Can be Friends: Selves and Social Relationships.” In The Anthropology of Friendship, edited by Sandra Bell and Simon Coleman, 21–38. Oxford: Berg. DOI: https://doi.org/10.4324/9781003135821-2

Carsten, Janet, ed. 2000. Cultures of Relatedness: New Approaches to the Study of Kinship. Cambridge: Cambridge University Press.

Davy, Laura. 2015. “Philosophical Inclusive Design: Intellectual Disability and the Limits of Individual Autonomy in Moral and Political Theory.” Hypatia 30 (1): 132–148. https://doi.org/10.1111/hypa.12119. DOI: https://doi.org/10.1111/hypa.12119

DaWalt, Leann Smith, Lauren Usher, Jan Greenberg, and Marsha Mailick. 2019. “Friendships and Social Participation as Markers of Quality of Life of Adolescents and Adults with Fragile X Syndrome and Autism.” Autism 23 (2): 383–393. https://doi.org/10.1177%2F1362361317709202. DOI: https://doi.org/10.1177/1362361317709202

De Freitas-Cardoso, M.C. 1987. A study on the existence of friendship between group home residents and nondisabled persons through an exploration of planned contacts. Ph.D. dissertation, University of Wisconsin.

England, Kim. 2010. “Home, Work and the Shifting Geographies of Care.” Ethics, Place and Environment 13 (2): 131–150. https://doi.org/10.1080/13668791003778826. DOI: https://doi.org/10.1080/13668791003778826

Firth, Raymond. 1999. “Preface.” In The Anthropology of Friendship, edited by Sandra Bell and Simon Coleman. Oxford: Berg.

Friedman, Carli, and Mary C. Rizzolo. 2017. “Friendship, Quality of Life, and People with Intellectual and Developmental Disabilities.” Journal of Developmental and Physical Disabilities 30: 39–54. https://doi.org/10.1007/s10882-017-9576-7. DOI: https://doi.org/10.1007/s10882-017-9576-7

Fulford, Casey, and Virginie Cobigo. 2016. “Friendships and Intimate Relationships among People with Intellectual Disabilities: A Thematic Synthesis.” Journal of Applied Research in Intellectual Disabilities 31: 18–35. https://doi.org/10.1111/jar.12312. DOI: https://doi.org/10.1111/jar.12312

Gardner, Don and Bettina Beer. 2015. “Anthropology of Friendship.” In International Encyclopedia of the Social and Behavioral Sciences, edited by James D. Wright, 425–431. Amsterdam: Elsevier.

Hanley, Jill, Lindsay Larios, and Jah-Hon Koo. 2017. “Does Canada “Care” about Migrant Caregivers?: Implications under the Reformed Caregiver Program.” Canadian Ethnic Studies 49 (2): 121–139. https://doi.org/10.1353/ces.2017.0015. DOI: https://doi.org/10.1353/ces.2017.0015

Hochschild, Arlie Russell. 1983, The Managed Heart: Commercialization of Human Feeling. Los Angeles, California: University of California Press.

_____.1995. “The Culture of Politics: Traditional, Postmodern, Cold-modern, and Warm-modern Ideals of Care.” Social Politics 2(3): 331–346. https://doi.org/10.1093/sp/2.3.331. DOI: https://doi.org/10.1093/sp/2.3.331

Killick, Evan, and Amit Desai. 2010. “Introduction: Valuing Friendship.” In The Ways of Friendship: Anthropological Perspectives, edited by Amit Desai and Evan Killick, 1–19. Oxford: Berghahn Books. DOI: https://doi.org/10.1515/9781845458508-002

Kittay, Eva Feder. 1999. Love’s Labor: Essays on Women, Equality and Dependency. New York: Routledge.

Lopata, Helen Z. 1991. “Friendship: Historical and theoretical introduction.” In Friendship in Context, edited by Helen Z. Lopata and David R Maines, 1–22. Greenwich, CT: JAI.

Nedelsky, Jennifer. 1989. “Reconceiving Autonomy: Sources, Thoughts and Possibilities.” Yale Journal of Law and Feminism 1: 7–36. https://doi:10.1093/acprof:oso/9780195147964.001.0001. DOI: https://doi.org/10.1093/acprof:oso/9780195147964.001.0001

Ogunsiji, Olayide, Lesley Wilkes, Debra Jackson, and Kath Peters. 2011. “Suffering and Smiling: West African Immigrant Women’s Experience of Intimate Partner Violence.” Journal of Clinical Nursing 21: 1659–1665. https://doi.org/10.1111/j.1365-2702.2011.03947.x. DOI: https://doi.org/10.1111/j.1365-2702.2011.03947.x

Okeke-Ihejirika, Philomina, Bukola Salami, and Ahmad Karimi. 2016. “African Immigrant Women’s Experience in Host Societies: A Scoping Review.” Journal of Gender Studies 27 (4): 428–444. https://doi.org/10.1080/09589236.2016.1229175. DOI: https://doi.org/10.1080/09589236.2016.1229175

Parreñas, Rhacel Salazar. 2000. “Migrant Filipina Domestic Workers and the International Division of Reproductive Labor.” Gender and Society 14 (4): 560–580. https://doi.org/10.1177%2F089124300014004005. DOI: https://doi.org/10.1177/089124300014004005

Pitt-Rivers, Julian. 2016. “The Paradox of Friendship.” Translated by Matthew Carrey. HAU: Journal of Ethnographic Theory 6: 443–452. https://doi.org/10.14318/hau6.3.032. DOI: https://doi.org/10.14318/hau6.3.032

Policarpo, Verónica. 2015. “What Is a Friend? An Exploratory Typology of the Meanings of Friendship.” Social Sciences 4: 171–191. https://doi.org/10.3390/socsci4010171. DOI: https://doi.org/10.3390/socsci4010171

Reindeers, J. S. 2002. “The Good Life for Citizens with Intellectual Disability.” Journal of Intellectual Disability Research 46 (1): 1–5. https://doi.org/10.1046/j.1365-2788.2002.00386.x. DOI: https://doi.org/10.1046/j.1365-2788.2002.00386.x

Robbins, Joel. 2013. “Beyond the Suffering Subject: Toward an Anthropology of the Good.” Journal of the Royal Anthropological Institute 19: 447–462. https://doi.org/10.1111/1467-9655.12044 DOI: https://doi.org/10.1111/1467-9655.12044

Salami, Bukola and Salima Meherali. 2018. “One of the Family? Familial and Professional Relationships between Migrant Live-in Caregivers and their Employers.” International Journal of MigrationHealth and Social Care 14 (2): 174–185. https://doi.org/10.1108/IJMHSC-09-2016-0034. DOI: https://doi.org/10.1108/IJMHSC-09-2016-0034

Salami, Bukola, Jordana Salma, K. Hegadoren, Salima Meherali, Tolu Kolawole, and Esperanza Díaz. 2019. “Sense of Community Belonging among Immigrants: Perspective of Immigrant Service Providers.” Public Health 167: 28–33. https://doi.org/10.1016/j.puhe.2018.10.017. DOI: https://doi.org/10.1016/j.puhe.2018.10.017

Santos-Granero, Fernando. 2007. “Of Fear and Friendship. Amazonian Sociality beyond Kinship and Affinity.” Journal of the Royal Anthropological Institute 13 (1): 1–18. https://doi.org/10.1111/j.1467-9655.2007.00410.x. DOI: https://doi.org/10.1111/j.1467-9655.2007.00410.x

Silvers, Anita, and Leslie Pickering Francis. 2007. “Liberalism and Individually Scripted Ideas of the Good: Meeting the Challenge of Dependent Agency.” Social Theory and Practice 33: 311–334. https://doi.org/10.5840/soctheorpract200733229. DOI: https://doi.org/10.5840/soctheorpract200733229

Stainton, Tim. 2017. “ Moving Towards Full Citizenship and Inclusion for People with Intellectual Disabilities.” Research and Practice in Intellectual and Developmental Disabilities 4 (1): 1–3. https://doi.org/10.1080/23297018.2017.1312505. DOI: https://doi.org/10.1080/23297018.2017.1312505

Thelen, Tatjana. 2015. “Care as Social Organization: Creating, Maintaining and Dissolving Significant Relations.” Anthropological Theory 15 (4): 497–515. https://doi.org/10.1177%2F1463499615600893. DOI: https://doi.org/10.1177/1463499615600893

Torresan, Angela. 2011. “Round Trip: Filming a Return Home.” Visual Anthropology 27: 119–130. https://doi.org/10.1111/j.1548-7458.2011.01096.x. DOI: https://doi.org/10.1111/j.1548-7458.2011.01096.x

Tronto, Joan. 2005. “Care as the Work of Citizens: A Modest Proposal.” In Women and Citizenship, edited by Marilyn Friedman, 130–145. New York: Oxford University Press DOI: https://doi.org/10.1093/0195175344.003.0008

Van Asselt, Danae, Angus Buchanan, and Sunila Peterson. 2015. “Enablers and Barriers of Social Inclusion for Young Adults with Intellectual Disability: A Multidimensional View.” Journal of Intellectual and Developmental Disability 40 (1): 37–48. https://doi.org/10.3109/13668250.2014.994170. DOI: https://doi.org/10.3109/13668250.2014.994170

Winkler-Reid, Sarah. 2016. “Friendship, Bitching, and the Making of Ethical Selves: What It Means to be a Good Friend among Girls in a London School.” Journal of the Royal Anthropological Institute 22 (1): 166–182. https://doi.org/10.1111/1467-9655.12339. DOI: https://doi.org/10.1111/1467-9655.12339

Withers, A. J. 2012. Disability Politics and Theory. Nova Scotia: Fernwood.

Wong, Sau-ling. 1994. “Diverted Mothering: Representations of Care-givers of Color in the Age of “Multiculturalism”.” In Mothering: Ideology, Experience, and Agency,edited by Evelyn Glenn, Grace Chang, and Linda Forcey. New York: Routledge.

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Published

2022-05-10

How to Cite

Neri, D. J. (2022). Interdependence: The Pathway to the Inclusion of People with Intellectual Disabilities and Immigrant Disability Support Workers. Anthropologica, 64(1). https://doi.org/10.18357/anthropologica6412022757

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CASCA Women’s Network Student Award